Thursday, November 8, 2012
No Spoonful of Sugar Here
Those with MS who have unsuccessfully gone down the mainstream medicine road and have turned the corner to find holistic medicine know all about supplements. Television personality and alternative health advocate Montel Williams swears by a strict regimen of consuming energy-enhancing and rejuvenating foods and supplements.
My regimen consists of seventeen supplements including two prescription pills and one prescription injectable. Even my prescriptions aren't "labeled" for use in multiple sclerosis. Notice my large pill keeper marked "breakfast, lunch, dinner and bedtime." But there's more to it than just swallowing my pills at the right time of day.
I take my probiotics on an empty stomach.
Some supplements are fat soluble so need to be taken with a piece of buttered bread or buttered veggies.
The heparin shots bruise my abdomen and have caused it to be tender.
If only a spoonful of sugar helped the medicine go down...in a most delightful way.
Did I mention I take several each of some of these pills? My pills swallowed per day is 25!
Bruising on my abdomen.
Tuesday, October 30, 2012
I have MS (multiple sclerosis)
I was diagnosed with MS at age 18 (the February before HS graduation.) I temporarily went blind in my left eye due to optic neuritis, which is the event that sends many people with MS to the doctor before receiving the diagnosis of MS. Steroids cleared the inflammation and I almost went on with life as usual. The inflammation of the optic nerve caused a residual effect of poor depth perception. This meant that a couple months later when I attempted to play Varsity tennis for the second year I couldn't perceive how high off the court the little yellow ball bounced. Subsequently, I didn't play a second year of Varsity tennis. My first experience with MS disappointment.
I went on to serve a Mormon mission in Canada and graduated from Washington State University having studied Microbiology. I didn't have any setbacks until 11 years post diagnosis when suddenly my body very quickly fell apart and I was nearly bedridden for 3 months. My walking quickly became labored and painful and I lost most of the sensation in my hands and fingers. This meant I couldn't cook, vacuum, fold clothes, shave my legs, wash my hair or open a door with a child safety cup on it (but who can really open those anyway?) This was a very stressful time in my life affecting my marriage and molding my 2 and a half year old into the very independent 12 year old she is today.
We were blessed during this time to have women at church volunteer to bring in dinner 3 nights a week. Had they not helped in that capacity my family either would have starved or my husband would have left us (no joke). Jeff worked 5 minutes from home and had an hour lunch break so he drove home everyday and fed us lunch. In the evenings he would do the laundry and housework I couldn't do. I spent most of three months laying on the couch (I lied there pretty much all day and slept there at night. The couch for some reason was more comfortable than the bed.) During the day my 2 1/2 year old watched many movies and played alone. By the time she turned 3 she could quote most of Monsters Inc. At night I lay awake on the couch with the sensation that rubber bands were tight around my legs and that my feet were on fire.
I started on Rebif and after a month my symptoms started improving. I saw a physical therapist for several months after who not only worked with me on regaining balance and muscle strength but also taught me exercises to teach my brain/hands to work again. It was an exciting day for both of us when while blind-folded I held a paper clip in my fingers and said, "This is a paper clip."
I never fully recovered. I have "permanent" nerve damage that makes my hands/fingers always feel "fuzzy" and I have little fine motor skill in the tips of my fingers (don't ask me to button up a shirt).
Five years ago baby number three was born; my son. On that day I fell, hard and busted my ankle. Since then my health has declined. I walk with a cane and use a wheelchair when at the mall or Costco.
I am going to do a series of blogs about MS and my journey with MS. Isn't every aspect of life a journey? There is much disorder in life but also so much to delight in.
If you know someone with multiple sclerosis or another disabling disease please direct them to my blog.
I went on to serve a Mormon mission in Canada and graduated from Washington State University having studied Microbiology. I didn't have any setbacks until 11 years post diagnosis when suddenly my body very quickly fell apart and I was nearly bedridden for 3 months. My walking quickly became labored and painful and I lost most of the sensation in my hands and fingers. This meant I couldn't cook, vacuum, fold clothes, shave my legs, wash my hair or open a door with a child safety cup on it (but who can really open those anyway?) This was a very stressful time in my life affecting my marriage and molding my 2 and a half year old into the very independent 12 year old she is today.
We were blessed during this time to have women at church volunteer to bring in dinner 3 nights a week. Had they not helped in that capacity my family either would have starved or my husband would have left us (no joke). Jeff worked 5 minutes from home and had an hour lunch break so he drove home everyday and fed us lunch. In the evenings he would do the laundry and housework I couldn't do. I spent most of three months laying on the couch (I lied there pretty much all day and slept there at night. The couch for some reason was more comfortable than the bed.) During the day my 2 1/2 year old watched many movies and played alone. By the time she turned 3 she could quote most of Monsters Inc. At night I lay awake on the couch with the sensation that rubber bands were tight around my legs and that my feet were on fire.
I started on Rebif and after a month my symptoms started improving. I saw a physical therapist for several months after who not only worked with me on regaining balance and muscle strength but also taught me exercises to teach my brain/hands to work again. It was an exciting day for both of us when while blind-folded I held a paper clip in my fingers and said, "This is a paper clip."
I never fully recovered. I have "permanent" nerve damage that makes my hands/fingers always feel "fuzzy" and I have little fine motor skill in the tips of my fingers (don't ask me to button up a shirt).
Five years ago baby number three was born; my son. On that day I fell, hard and busted my ankle. Since then my health has declined. I walk with a cane and use a wheelchair when at the mall or Costco.
I am going to do a series of blogs about MS and my journey with MS. Isn't every aspect of life a journey? There is much disorder in life but also so much to delight in.
If you know someone with multiple sclerosis or another disabling disease please direct them to my blog.
Tuesday, May 15, 2012
Avoid Like The Plague
Some readers may be made to feel rather guilty and uncomfortable by today's post - if so, GOOD!
I've hated pornography ever since I became aware of its existence. I'm furious at the promoters of it and even more livid at the pathetic partakers. I realize that both men and women fall into pornography's snare, but I'm focusing on men who allow themselves to get tangled in this sticky web. I believe a man's addiction to pornography is an outward sign of his inward disrespect for women, including the women in his own life.
It has been said that motherhood is near to divinity; the highest, holiest service assumed by women. Because mothers are essential to God's plan of happiness, their sacred work is opposed by Satan, who likes nothing better than to destroy families and demean the worth of women. A man who entertains himself with pornography in any of its disgusting forms is dishonoring the woman who so unselfishly sacrificed her body to give him life. He disrespects this woman who gave years of her life - years of work and worry, to nurture and raise him.
"Pornography is degrading of women. It is evil. It is infectious, destructive, and addictive. The body can cleanse itself from harmful effects of contaminated food or drink but it cannot vomit back the poison of pornography. Once recorded, it always remains subject to recall, flashing its perverted images across the mind, with power to draw a person away from the wholesome things in life."
A man should have tremendous love for the mother of his children. He should give her the gratitude, respect, and praise she deserves. A man should always strive to have his thoughts and actions inspire confidence and trust, not bitterness, contempt, and distrust. He should have a moral code that he will not allow himself to deviate from! In turn, his wife will adore and respect him, and he will find that her faithful love and devotion will bring him happiness and satisfaction.
Because pornography is so addictive, men must avoid any curious exploration. It will lead to a habit, a sickness, that will control them, and often lead to coarser, more perverted material and sexual transgression. We ALL need to avoid this plague on society at all costs.
Because it is so very pervasive, pornography can take one unawares. Even in such cases, we can immediately reject it. We do not have to "invite it to come in and offer it a chair."
I think this quote sums it up best: "One of the most damning influences on earth, one that has caused uncountable grief, suffering, heartache, and destroyed many marriages, is the onslaught of pornography in all of its vicious, corroding, destructive forms. Whether it be through the printed page, movies, television, obscene lyrics, the telephone, or on a personal computer screen, pornography is overpoweringly addictive and severely damaging. This potent tool of evil degrades the mind, heart, and the soul of any who use it. All who are caught in its seductive, tantalizing web and remain so, will become addicted to its immoral, destructive influence." For many, that addiction cannot be overcome without help. Unfortunately, most will insist that they are not addicted, and that they "don't need anyone's help."
The pattern is so familiar. It begins with a curiosity that is fueled by its stimulation and is justified by the false notion that it does no harm to anyone. Lulled by this lie, the experimentation progresses, with more powerful stimulations, until the web closes in, and an immoral habit is formed.
How can a man, particularly one who has been taught a moral code, not consider the emotional and spiritual damage he causes the women in his life when he engages in such abhorrent activity? His participation in porn in any of its disgusting forms is a manifestation of unbridled selfishness. Eventually he will see that he has forfeited many of life's greatest blessings, while shattering his wife's hopes and dreams, and irreparably diminishing her love, trust, and devotion.
It will create a life full of disorder.
(Stay tuned for Part 2)
Thursday, April 5, 2012
Moms of Girl Scouts Cookie Drive
Did you purchase Girl Scout cookies this year? I am acquainted with a number of Girl Scouts due to the fact their mothers are friends of mine. They are becoming very sharp salespeople, and each year I see their confidence grow. I am not speaking of the little uniformed cuties, but of their dedicated moms.
I bought a total of 10 boxes this year, and I've decided that not only will I purchase fewer boxes next year, but I will buy only from the girls themselves. I won't buy from moms who show up at baby showers, order forms in hand, nor from moms who go door to door in my neighborhood. (Yes, really - just this past week there were two who did that, and there wasn't a Girl Scout in sight).
I spent 6 years as a scout, and each cookie campaign found me carefully practicing my sales technique. At each neighborhood door I would say, "Hi, I'm Nancy. I'm from Troop 117 and I'm selling delicious Girl Scout cookies. How many boxes would you like today?" I closed with a smile, and I usually had a sell. I realize that safety is a bigger issue today than it was in my scouting days, and mothers (or dads) really should accompany their daughter as she makes her rounds; however, parents should stay in the background and allow the girls to greet the customers and present the sales talk. Juliette Gordon Low's aim was that all aspects of girl scouting should empower the girls and teach fairness, courage, character, and confidence - hard to do when the lion's share of the work is being done by the mothers.
I'm reminded of a scene from the 1991 film, "The Addam's Family." When a couple of girl scouts ask Wednesday if she would like to buy some Girl Scout cookies, her response was, "Are they made from real Girl Scouts?" My question is, "Are Girl Scouts actually putting themselves into the selling of their cookies?" I'd like to see them do a lot more of the work, and their moms a lot less.
Did you purchase Girl Scout cookies this year? Did you buy from a mom or a Girl Scout?
I bought a total of 10 boxes this year, and I've decided that not only will I purchase fewer boxes next year, but I will buy only from the girls themselves. I won't buy from moms who show up at baby showers, order forms in hand, nor from moms who go door to door in my neighborhood. (Yes, really - just this past week there were two who did that, and there wasn't a Girl Scout in sight).
I spent 6 years as a scout, and each cookie campaign found me carefully practicing my sales technique. At each neighborhood door I would say, "Hi, I'm Nancy. I'm from Troop 117 and I'm selling delicious Girl Scout cookies. How many boxes would you like today?" I closed with a smile, and I usually had a sell. I realize that safety is a bigger issue today than it was in my scouting days, and mothers (or dads) really should accompany their daughter as she makes her rounds; however, parents should stay in the background and allow the girls to greet the customers and present the sales talk. Juliette Gordon Low's aim was that all aspects of girl scouting should empower the girls and teach fairness, courage, character, and confidence - hard to do when the lion's share of the work is being done by the mothers.
I'm reminded of a scene from the 1991 film, "The Addam's Family." When a couple of girl scouts ask Wednesday if she would like to buy some Girl Scout cookies, her response was, "Are they made from real Girl Scouts?" My question is, "Are Girl Scouts actually putting themselves into the selling of their cookies?" I'd like to see them do a lot more of the work, and their moms a lot less.
Did you purchase Girl Scout cookies this year? Did you buy from a mom or a Girl Scout?
Friday, March 30, 2012
Green Smoothie
Found this wonderful green smoothie recipe on Pinterest and had to share because my kids love it. They ask for this smoothie and they are ages 4, 6 and 11.
I usually don't like things that are green :)
I've tweeked the recipe a bit.
2 handfuls of baby spinach
1 cup of chunk pineapple
1 banana
1 cup high quality vanilla yogurt
1 cup orange juice
Blend well and enjoy!
I took pictures so you can see how much the recipe makes.
Yum! This smoothie is delightful!
I usually don't like things that are green :)
2 handfuls of baby spinach
1 cup of chunk pineapple
1 banana
1 cup high quality vanilla yogurt
1 cup orange juice
Blend well and enjoy!
I took pictures so you can see how much the recipe makes.
Yum! This smoothie is delightful!
Wednesday, March 28, 2012
80 MPH to Divorce
I don't plan to blog too often regarding what I've seen in the news, in this case Good Morning America and Facebook clips (Facebook is official news, right?), but I had to comment. More than 5 million people have viewed the video of Chelsea Chambers trying to explain how far one would travel in an hour if traveling at a speed of 80 miles per hour. We all got a good laugh and thus a little healthier (Dr. Oz says laughing will ease stress, lower blood pressure and boost the immune system). But it’s not Chelsea's “blondeness” I want to focus on - It's her sweet (NOT!) husband, Travis.
So Chelsea’s not the brightest star in the sky. Travis would have known that before he said, “I do.” What Chelsea didn’t know before she married this prince was that he was the kind of man who would show her such disrespect and humiliate her globally; a man who would get a bang out of knowing that the world is laughing at his wife.
Right now Chelsea should be living in newlywed bliss, but instead she is hurting. She might be wondering What would my family and friends think of me if I divorced him? Chelsea, it doesn’t matter what anyone thinks! Trust me, his disrespect and penchant for laughing at you will continue. On my wedding day I reminded my soon-to-be husband that he was NOT to smash cake in my face, a practice I have always seen as unloving and belittling. He promised he wouldn’t - but what did he do instead? While sweetly holding that most special bite of cake to my mouth, and looking intently into my eyes, he took his finger and smeared frosting across my nose. I felt betrayed, and I can tell you that the show of disrespect and betrayal escalated in no time.
Here’s what Chelsea wrote on their You Tube video page:
“Thank you for those of you that have been understanding, positive and supportive through the experience of the unplanned, unintended, and unsought public attention we've received for the viral YouTube video. For those of you that have misinterpreted the context of the video and commented negatively, not having the background story, we sympathize with you, we aren't angry and hope you'll reconsider your feelings. Our relationship has been strengthened by this experience and we encourage anyone with questions to view Good Morning America and our future posts. We're not exactly sure where we will go with the public attention yet but we welcome suggestions. We certainly never wanted to become notorious but when life gives you rotten cabbage sometimes you just might be able to make lemonade :) We have created a Page on Facebook, 'Travis and Chelsea Chambers' Much love, Travis and Chelsea”
I tried to post the GMA interview but it just didn’t want to download (I’m new at this). Watch it and you’ll see Chelsea looks like she’s about to cry while Travis is “apologizing.” I’m sure it was Travis who convinced Chelsea that this experience was strengthening their marriage.
By the way, Chelsea, you might want to keep a low profile. When you have “rotten cabbage” you get sauerkraut.
Pass this on to everyone you know. It just might reach Chelsea.
What’s your reaction? Do you think it’s a display of utter disrespect, do you think it was playful fun or do you think it is a hoax ?
Leave me your comment.
Tuesday, March 27, 2012
To Blog or Not To Blog
I’ve been wanting to create a blog for some time now but couldn’t decide on a blog theme. Should I blog about Gluten Free cooking? That would mean constantly cooking and trying new recipes and I really don’t want to spend all my time covered in flour (gluten free of course).
I love sewing and crafting. Maybe I would blog about that? Then I realized there are a gazillion crafty blogs out there and I don’t create my own projects. I’m a copy cat! I couldn’t possibly stretch myself to come up with some new idea. That would be too much mental work.
I have Multiple Sclerosis. What about a blog geared towards self help and support for others with disabilities? No. I may have MS but I don't want it to consume my life. Sometimes I like to forget.
Also, I used to be an avid journal writer but that fell to the way side 14 years ago when I got married. The past 14 years have been full of journal entry experiences but I just don’t make time any more for jotting those things down. On that same note, I’ve been wanting to write down some family history stories and again just always tell myself I have other things to do.
And so after much deliberation it has come down to this. How about a blog that doesn’t have a theme? That gives me the freedom to post about anything and everything that interests me and therefore there will always be a post that appeals to someone else. I’m reminded of “Seinfeld” and Jerry and George’s quest to have a TV show about nothing. But my blog will be just the opposite. It will be about everything! You may not be gluten free but I promise you any gluten free recipe I post will be one that any nonGF person will enjoy. I know every one of you has a friend or loved one with MS or some other disabling disease. My posts about MS and my struggles and achievements will be something you’ll want to pass on to them. And the stories I tell about my life? Well, don’t tell me there isn’t a voyeur in you because there’s a little bit of voyeur in us all (not the sexual kind, but the contemporary definition. The reason we watch Survivor, Big Brother, etc.) J
So…an introduction. I’m Nancy…
I have Multiple Sclerosis. I walk with a cane. I walk really slow and cautious with that cane…Sometimes my friends yell, “Run Forrest, Run.” Next time one of them says that to me I’m going to go leopard on them with my cane…It’s leopard print…J
I recently purchased a Singer serger and a Brother Innovis 80 Project Runway Limited Edition sewing machine. They have changed my sewing life! Why did I not buy a serger years ago?! And my $800 sewing machine? LOVE it!
I enjoy music…all genres. Every genre has at least one song I like. How can a person be so boring as to only like a particular type of music and nothing else? Right now on my Ipod I have Simon and Garfunkel, Shania Twain, Miley Cyrus, Tao Cruz, Bryan Adams, Wilson Phillips, REO Speedwagon, Madonna, The Jonas Brothers, the list goes on.
Would you like to read about my paternal grandfather whose ship was torpedoed by the Japanese during WWII? Or my maternal grandmother who at 17 married a man nearly 20 years her senior?
Enjoy the delightful disorder of life and please stay tuned…
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